so the doctor called with the results of the tests... As we already know there are 2 main tumors instead of one, making Miss Lilly an extremely rare case. The one tumor shrunk by 90%!!!!!  However, the other tumor only shrunk by 40%.  Therefore making it difficult to decide what to do next. Do we give her more chemo that may not make a difference and risk causing permanent hearing damage, heart damage, infertility etc.?  Or do we watch it now and see if it was shrunk enough to be significant.? Our oncologist spoke with the tumor board and other oncologists who work with Neuroblastoma cases. The deciding factor is whether or not it is still in her bone. It was in her cheek bones and the back of her skull. If it is still there then we will do more chemo, if it is not then we will discuss it again and possibly hold off on the chemo and reevaluate again in a couple of months. I was really hoping for "yes or no" kind of answer but now we wait for the bone scan....