I havent made a new post in a while. It gets hard sometimes to put it into words. Lilly was indeed neutropenic and ended up getting several hours of IV fluids. The next day we were back for a transfusion because her red blood cell count was too low and she had several more hours of fluids.

Last week, both Wednesday and Thursday, we were there for a new CT scan and MIBG scan. This is the first full reevaluation since starting chemo. They need to see if the chemo worked and determine how much more she needs or if surgery is an option. The anesthesia makes her very sick and she vomited several times. We just wait for results.....